On silver linings & dawns that follow darkness w/ Mol
Mol (she/her/they/them) and Freyia (she/her) planned to talk about the way Western medicine carves the body like a butcher, severing the brain from the rest of the body and presenting it as its own separate entity. What happened was an accidental and serendipitous exploration of disabled joy.
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Content Warnings:
Depression, chronic illness, healthcare inaccess and trauma are discussed throughout.
There are specific mentions of the following topics at the time stamps provided:
21:00 - 22:45 - Psychosomatic symptoms
25:10 - 28:04 - Diagnosis - inaccess, stigma and questioning the concept
32:57 - 33:11 - Thoughts of being undeserving of accessing healthcare because of scarcity of resources
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References:
What Is EDS - The Ehlers Danlos Society
https://www.ehlers-danlos.org/what-is-eds/
What Is Hypermobile Spectrum Disorder - The Ehlers Danlos Society
https://www.ehlers-danlos.com/what-is-hsd/
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Sick Sad Girlz
Website: https://www.sicksadgirlz.com
Instagram: @sicksadgirlz
/
Seasonal Affective Disorder - Mind
/
Jessica Eccles - Hypermobility and Neurodiversity - Brighton Medical School
https://m.youtube.com/watch?v=uO_uR9HJhj4
Sensory Differences - A Guide For All Audiences - National Autistic Society
Autism and Sensory Processing - Purple Ella
/
An Introduction To The NHS - NHS
https://www.england.nhs.uk/get-involved/nhs/
Who Do We Think We’re Kidding With The NHS? - Christopher Snowden
https://thecritic.co.uk/who-do-think-were-kidding-with-the-nhs/
The NHS Mental Health ‘Service’? There Isn't One - Anonymous
https://www.theguardian.com/society/2016/jan/27/the-nhs-mental-health-service-there-isnt-one
Mental Health Services In England Are Being ‘Uberised’ - and That’s Bad For Patients and Therapists - Elizabeth Cotton
Outsourcing Healthcare Services To The Private Sector and Treatable Mortality Rates In England, 2013–20: An Observational Study Of NHS Privatisation - Benjamin Goodair
NHS: Inconsistent Care Makes For Consistently Bad Headlines - The Say Team
https://www.saycomms.co.uk/blog/2014/11/nhs-inconsistent-care-makes-consistently-bad-headlines/
/
Chronic Illness and Depression: What Is The Link? - Medical News Today
https://www.medicalnewstoday.com/articles/chronic-illness-and-depression
What Is Trauma? The Author Of ‘The Body Keeps The Score’ Explains | Bessel Van Der Kolk - Big Think
https://m.youtube.com/watch?v=BJfmfkDQb14
What Is The Stress Response Cycle and How Can You Complete It? - Ebury Reads
https://m.youtube.com/watch?v=CyppUSV1FN0
Functional Neurological Symptoms - Jon Stone
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5873716
Functional Neurological Symptoms - NHS Bristol
https://www.nbt.nhs.uk/our-services/a-z-services/neuropsychiatry/functional-neurological-symptoms
What Is POTS - POTS UK
https://www.potsuk.org/about-pots/what-is-pots
Let’s Learn About POTS - Kimberly Zapert
“…all emotions have a physical blueprint…”
Interoception and Emotion - Critchley et al
https://www.sciencedirect.com/science/article/pii/S2352250X17300106
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Dissociation From The Body and The Vagus Nerve - Jessica Maguire
Why The Vagus Nerve Is Your Built In Anti Inflammatory - Jessica Maguire
https://m.youtube.com/watch?v=UIxMqTvVPh0&feature=youtu.be
Understanding and Working With The Window Of Tolerance - Lori Gill
/
From The Fainting Couch
Instagram: @fromthefaintingcouch
/
Diagnosis Is Not A Privilege w/ Maggie Leppert - Disorderland
https://disorderland.substack.com/p/e04-diagnosis-is-not-a-privilege#details
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Improving Access to Psychological Therapies (IAPT) - The Need for Radical Reform - Michael J Scott
https://journals.sagepub.com/doi/full/10.1177/1359105318755264
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The Beighton Score: How To Assess Joint Hypermobility - The Ehlers Danlos Society
https://www.ehlers-danlos.com/wp-content/uploads/Beighton-Score-2017.pdf
Advances In Assessment Of Hypermobility-Related Disorders - Jane V Simmonds
https://onlinelibrary.wiley.com/doi/full/10.1002/ajmg.c.31943
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Let’s Talk About Body Neutrality - Adela Afadi
Stop Hating Your Body: Principle 8 Of Intuitive Eating - Kelly Abramson
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Internalized Ableism: The Struggle To Accept Our Own Worthiness - Alison Hayes
https://thrivingwhiledisabled.com/internalized-ableism-the-struggle-to-accept-our-own-worthiness/
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Credits:
H O S T
Freyia Lilian
G U E S T
Molly Rowe
Instagram: @molwritespoetry
D I S T R I B U T I O N P A R T N E R
Strong365
Website: https://strong365.org
M E N T O R S H I P
Chantel Garret (she/her)
LinkedIn: https://www.linkedin.com/in/chantelgarrett
M U S I C
Foxhunt (he/him)
Soundcloud: https://soundcloud.com/foxhunt-official
S O U N D
Dr Ted Wickstead (he/him)
LinkedIn: https://www.linkedin.com/in/edward-wickstead/?originalSubdomain=uk
ORCID: https://orcid.org/0000-0002-3593-1222
Research Lab Page: https://labs.icahn.mssm.edu/yuelab
Blog: https://notsomentalhealth.com/about
Instagram: @norestforthescientist
Twitter: @DrTedWickstead
A S S I S T A N T
Becca Vines (they/them)
LinkedIn: https://www.linkedin.com/in/rebecca-vines-3111b81b8
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If you are concerned about your mental health, Folie À Deux always recommends turning to trusted members of your community first.
In the words of Drs Amelia and Emily Nagoski:
“The cure for burnout isn’t self care, it’s all of us caring for each other.”
Access allowing, spending your time and resources finding a supportive professional you gel with can be invaluable to your journey.
If you are in crisis and you don’t know where to turn, Strong 365 hosts their own free 24 hour peer led online mental health chat which can be found here:
https://www.7cups.com/p/strong365/?wla=strong365
A thorough list of mental health helplines for a range of countries can be found here:
https://www.helpguide.org/find-help.htm
The world is better with you in it.
